Rivista di formazione e di aggiornamento professionale del pediatra e del medico di base, realizzata in collaborazione con l'Associazione Culturale Pediatri
M&B Pagine Elettroniche
Il punto su
Le malformazioni urogenitali complesse: la presa in carico chirurgica e psicologica del bambino-adolescente e della famiglia
1Università di Trieste
2IRCCS Materno-Infantile "Burlo Garofolo", Trieste
Key words: Bladder exstrophy-epispadias complex (BEEC), Parents, Psycho-sexological development, Multidimension, Sexuality
Bladder exstrophy-epispadias complex (BEEC) represents a spectrum of genitourinary malformations concerning male and female sexes. It needs different surgical operations to obtain, primarily, secure abdominal wall closure, achieving urinary continence with preservation of renal function, and, finally, adequate cosmetic and functional genital reconstruction. The psychological feature and the sexual aspects of this pathology have important effects on the patient’s and their family’s past. So, the multidisciplinary approach, which involves psychologist and surgeon upfront, permits: to completely answer patients’ and relatives’ questions, to give emotional and sexual education, emphasizing the expression and the verbalization of the emotions, and to give people concerned useful tools to face the BEEC in a more conscious way. By treating the pathology in a multidimensional way, it is possible to accompany the patients and their families along the developmental steps, optimizing therapeutic intervention benefits.
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