Novembre 2009 - Volume XXVIII - numero 9
Organizzazione sanitaria
Commissione Nazionale per la definizione e l’aggiornamento dei livelli essenziali e appropriati di assistenza
Indirizzo per corrispondenza: lodovicoperletti@virgilio.it
Key words: Rare disease centres, Biliary atresia, Congenital deafness, Cochlear implants
The organizational models of the supra-regional centres for rare diseases in some European countries are compared by reporting the cases of biliary atresia and cochlear implants in children. Once again Italy departs from Europe; the causes are examined in the present work. Moreover, the important role of the family paediatrician, scientific and cultural associations is underlined.
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