Settembre 2004 - Volume XXIII - numero 8
Problemi non correnti
UOC di Pediatria, Ospedale S. Antonio, San Daniele del Friuli (UD)
Key words: Child, Disability, Family, Integrated care
Children with disabilities and their families experience a wide array of problems. In order to better respond to their needs, 81 families have been studied, by collecting and analysing both quantitative and qualitative information. A number of problems emerge from this analysis: poor communication between the health and social services, the parents, poor links with and support by the community; disparity in attention experienced by the siblings and consequent unease and uncertainties; parents feeling overwhelmed and left alone. Paediatricians and other health professionals need to be aware of all these aspects and to get more involved in the coordination and facilitation of integrated care to the families of children with severe disability.
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