Settembre 2004 - Volume XXIII - numero 8

Medico e Bambino


Problemi non correnti

La famiglia del bambino con bisogni speciali

BRUNO SACHER

UOC di Pediatria, Ospedale S. Antonio, San Daniele del Friuli (UD)

THE FAMILY OF THE CHILD WITH SEVERE DISABILITY

Key words: Child, Disability, Family, Integrated care

Children with disabilities and their families experience a wide array of problems. In order to better respond to their needs, 81 families have been studied, by collecting and analysing both quantitative and qualitative information. A number of problems emerge from this analysis: poor communication between the health and social services, the parents, poor links with and support by the community; disparity in attention experienced by the siblings and consequent unease and uncertainties; parents feeling overwhelmed and left alone. Paediatricians and other health professionals need to be aware of all these aspects and to get more involved in the coordination and facilitation of integrated care to the families of children with severe disability.

Vuoi citare questo contributo?

B. Sacher La famiglia del bambino con bisogni speciali. Medico e Bambino 2004;23(8):492 https://www.medicoebambino.com/?id=0408_492.pdf


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